Skip to content
General News, Medical Health Aged Care

South Australia lightens the overload of Australia’s most common genetic disorder

Haemochromatosis Australia 2 mins read

MEDIA RELEASE Embargo until June 1, 2023 at 12.00am EST

South Australian landmarks along with around 100 well-known buildings and landmarks across Australia will turn red every evening from 1-7 June, shining a light on an extremely common genetic condition that most people have never heard of.

It is part of a worldwide initiative to raise awareness of haemochromatosis – also known as iron overload – and to prompt people to get tested. Most people know that having too little iron in your body can cause anaemia, which is characterised by tiredness and lethargy, but few people know that the same symptoms can also be caused by having too much iron.

The hereditary condition, which is passed on from both biological parents, is simple to detect and treat but if undiagnosed or ignored can lead to serious and life-threatening illness, including liver disease and diabetes. One in seven Australians carry one copy of the defective gene, while and one in 200 Australians have two copies, which puts them at high risk of developing the condition.

Dr Dan Johnstone, an iron researcher who also has the condition, says early detection is key to minimising or preventing permanent damage. “Awareness of haemochromatosis is more important now than ever as early diagnosis will help save lives, cut health costs and reduce unnecessary suffering for so many individuals and families. Everybody is different; some people will have early symptoms of fatigue or joint aches while others won’t know they have the condition until the damage is already done. Anyone who suspects they may have this condition should ask their GP for a blood test. Haemochromatosis is not a burden in your life if you get on to it early. Early diagnosis is key to managing and reducing complications. It is usually managed by a regime of therapeutic blood donations, at an Australian Red Cross Lifeblood donor centre. This is a classic win-win situation, benefiting both the individual and the community,” said Dr Johnstone.

Haemochromatosis Australia spokesperson, Tony Moorhead, said, “Despite being the most common genetic disorder in Australia, haemochromatosis is often underdiagnosed because people don’t know about it and symptoms are non-specific. Unfortunately, most of those affected aren’t diagnosed until aged in their mid-forties and already suffering ill health. “There are people with the condition who should have been diagnosed decades earlier. This would have reduced the suffering, medical cost and even loss of life that results from iron overload. If haemochromatosis is detected early enough it is completely preventable – those affected need never get sick, they simply need to donate blood to maintain normal iron levels and their health.” Mr Moorhead says. “Hereditary haemochromatosis is estimated to cost Australia’s health system about $280 million annually and to add further cost burdens by compounding other chronic conditions.” Haemochromatosis is easy to test, simple to treat but tragic to ignore. -

 

ENDS Landmarks lighting up can be found here: www.ha.org.au/whats-on/world-haemochromatosis-week/lighten-the-overload/ 


Key Facts:

* Australia's most common genetic disorder, that most have never heard of

* World Haemochromatosis Awareness Week June 1 - 7 

* Landmarks lighting up red can be found here: www.ha.org.au/whats-on/world-haemochromatosis-week/lighten-the-overload/ 


About us:

To find out more visit www.ha.org.au/haemochromatosis


Contact details:

Media enquiries:

Kellie Curtain M: 0412339690 kellie@indeliblemarks.net.au 

More from this category

  • Medical Health Aged Care
  • 21/06/2024
  • 16:08
Kolmar BNH

Kolmar BNH Sharpens Global Competitiveness with Dual Functionality of HemoHIM

SEOUL, South Korea–BUSINESS WIRE– Kolmar BNH (KOSDAQ: 200130), a leading Original Development Manufacturing (ODM) company for health functional foods, strengthens its market position by…

  • Contains:
  • General News, Sport Recreation
  • 21/06/2024
  • 15:57
Breast Cancer Network Australia

MORE THAN A GAME …. MORE THAN A NAME Special tribute to those affected by breast cancer – Saturday’s Pink Lady Match – Melbourne V Nth Melbourne.

21/06/ 2024 Melbourne Demons are playing with a special purpose in Saturday night’s Pink Lady Match – their warm-up tops will carry the names…

  • Contains:
  • Medical Health Aged Care
  • 21/06/2024
  • 08:22
Eastern Health

Surgical hub re-opens at Eastern Health Blackburn

Key Messages: Eastern Health Blackburn Public Surgical Centre has reopened and commenced providing services to the community. Closed in 2023 for refurbishment, a large portion of the redevelopment has been completed The facility opens with a updated floorplan boasting onsite pharmacy, specialist clinics and new surgical theatres, which optimise resources for staff and patients. The full development is set to be completed in the coming months. ---------------------------------------------------------------------------------------------------------------------------- DOWNLOAD VIDEO with Lou Ford and Nicole O’Brien ---------------------------------------------------------------------------------------------------------------------------- Eastern Health Blackburn has opened its doors again, providing surgical services to the community. The initial stage of the site redevelopment has utilised the…

Media Outreach made fast, easy, simple.

Feature your press release on Medianet's News Hub every time you distribute with Medianet. Pay per release or save with a subscription.