Skip to content
Medical Health Aged Care

RACGP: General practice care crucial in helping patients with rare cancers

Royal Australian College of GPs 3 mins read

The Royal Australian College of General Practitioners (RACGP) has called on government to institute key reforms to help GPs and practice teams improve the health and wellbeing of people diagnosed with rare and less common cancers.

It comes following the College’s submission to the Senate Standing Committees on Community Affairs inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer.

Chair of the RACGP Expert Committee on Quality Care, Professor Mark Morgan, said that GPs must be front and centre when it comes to helping people with rare cancers.

“GPs play a vital role in the diagnosis, screening, treatment and care coordination of patients with a rare cancer, and government policy must reflect that,” he said.

“As outlined in the National Strategy Action Plan for Rare Diseases, GPs are often the first point of contact for people with rare diseases and if we are included in the care of patients with cancer this will ultimately improve the quality of care they receive and their overall wellbeing.

“It is vital that patients with cancer are encouraged to see their GP during their treatment to monitor progress and ensure that other health conditions and preventive screens are not overlooked. We shouldn’t just be focussed on treating cancer in isolation, other health activities and interventions must also be front of mind as part of a shared care model to improve care for people with complex chronic conditions. GPs are key to multidisciplinary teams and care coordination, and we need models in place to enable GPs and other health professionals to work collaboratively at the top of their scope, so that patients get the best outcomes.

“Greater investment in general practice care would also make a real difference. This year’s federal Budget, including a new Medicare Benefits Schedule item for consultations lasting more than an hour, was a positive step forward. However, the job is not done because the MBS still rewards shorter, episodic care rather than long-term management of complex diseases.

“The MBS also doesn’t adequately support direct communication between GPs and other specialist providers leading to an over reliance on periodic letters or waiting for MBS-funded consultation visits. Basically, patient care coordination is not funded under this system. It’s important to keep in mind that patients might benefit from opportunities to engage in physical activity or being connected to a peer support group. They might need to receive care from specialist teams based within a hospital and allied health providers in the community.

“GP teams are ideally placed to connect all these services, but current funding models are inadequate. Particularly when it comes to rare cancers, we may need to undertake further research and talk to other health professionals caring for the patient. So, what we really need is more investment in the MBS and the introduction of payment models to better support longer complex consultations and shared care to get the best possible results for our patients.

“Making clinical information more accessible for GPs would also be very beneficial. The College backs expanding HealthPathways, a system developed through Primary Health Networks, which features links to clinical guidance for assessing and managing a patient with a particular symptom or condition and locally relevant information on referrals to existing services and specialists.

“Ask any GP and they will tell you that rare and less common cancers can be challenging to diagnose and it’s difficult to identify patients who are at higher risk of rare cancers to institute regular surveillance. In addition to further research into rare and less common cancers, we also back further funding to investigate the feasibility of an urgent cancer referral system that includes people with suspected rare and less common cancers, like the one that operates in the United Kingdom. Under that system, anyone with symptoms that might indicate cancer is seen by a relevant specialist within two weeks, which means patients benefit from early diagnosis and earlier access to treatment.

“We have come a long way in Australia in treating and caring for people with rare and less common cancers, but there is still great room for improvement. The College looks forward to working with government to ensure all possible measures are in place to help patients with cancer get the best possible care.”

The RACGP is currently updating the Guidelines for preventive activities in general practice 9th edition (the Red book). The Red Book provides the general practice team with guidance on screening, case finding and proactive preventive care. These guidelines do not receive any public funding but are critical source of advice to GPs and other health professionals. Public funding would enable the RACGP to invest greater resources in the development and implementation of the guideline’s recommendations. 


RACGP spokespeople are available for interview.

About us:

About the RACGP

The Royal Australian College of General Practitioners (RACGP) is the peak representative organisation for general practice, the backbone of Australia’s health system. We set the standards for general practice, facilitate lifelong learning for GPs, connect the general practice community, and advocate for better health and wellbeing for all Australians.

Visit To unsubscribe from RACGP media releases, click here.

Contact details:

John Ronan
Media Adviser

Ally Francis
Media Adviser

Stuart Winthrope
Media Officer


Email: (we will respond promptly to all requests for interview).


Follow us on Twitter: @RACGP and Facebook.


More from this category

  • Medical Health Aged Care
  • 28/05/2024
  • 18:07
TVM Capital Healthcare

TVM Capital Healthcare Announces the Closing of its Saudi Arabia-Focused TVM Healthcare Afiyah Fund

Approximately USD 250 million (SAR 920 million) raised from a distinguished group of Saudi, GCC and European investors, led by JADA, PIF’s Fund of…

  • Contains:
  • Medical Health Aged Care
  • 28/05/2024
  • 13:14
Dementia Australia

TOMORROW: South Australian D-Esc VR launch of new workshop for de-escalating a behavioural emergency in a care setting

Tomorrow, Dementia Australia unveils D-Esc to South Australia’s aged care sector, a new innovative virtual reality (VR) training workshop for de-escalating a behavioural emergency in a care setting. D-Esc provides an immersive simulation, designed for frontline and health care professionals, to adopt an interactive approach to de-escalation training. Join us to experience D-Esc – the first of its kind VR training workshop set to revolutionise the dementia care industry, as well as to hear about how Dementia Australia’s suite of technology is positively impacting the lives of people living with dementia and those caring for them. B-roll, VR footage and…

  • CharitiesAidWelfare, Medical Health Aged Care
  • 28/05/2024
  • 06:01
Leukaemia Foundation

Latest data confirms one in 12 Australians will be affected by blood cancer

On World Blood Cancer Day, Tuesday May 28, 2024, the Leukaemia Foundation unveiled shocking new statistics highlighting the widespread prevalence of blood cancer in Australia, underscoring that the nation is currently facing a significant blood cancer crisis. According to latest figures, it’s estimated that eight percent of Australians will be diagnosed with blood cancer at some point in their lifetime. This means one in every twelve Australians will be directly affected by blood cancer.[i] Furthermore, as one of the nation’s deadliest cancers that claims over 6,000 lives each year, sadly, one in three Australians will lose their life within five…

Media Outreach made fast, easy, simple.

Feature your press release on Medianet's News Hub every time you distribute with Medianet. Pay per release or save with a subscription.