Skip to content
Disability, Medical Health Aged Care

Disconnect between NDIS and palliative care services

Palliative Care Australia 2 mins read
Anne-Marie Carmody is among patients caught in a gap between NDIS and health services. (ABC News: Zathia Bazeer)

 

People living with disabilities linked to life-limiting conditions are experiencing reduced access to services that help them stay at home and remain independent.

Recent media reports, as well as many stories from families, healthcare workers and advocates, point to a break down in how palliative care services and the NDIS are integrated, which means vulnerable people are going without critical services,” says Camilla Rowland, Chief Executive Officer, Palliative Care Australia (PCA).

“In some cases, these are the kinds of services that can keep people out of hospital and allow people to remain in their own home, with loved ones, for as long as possible.

“Services like personal care, food and diet, respite, transport, domestic assistance, and social supports.”

Over recent months many people with life-limiting illnesses, carers, support workers, advocates and health providers have shared stories of their challenges with the National Disability Insurance Scheme (NDIS) which appear to reflect a growing problem.

Challenges include:

  • Widespread confusion about which services and systems are responsible for the provision of disability and other supports for people with life-limiting conditions
  • Limited options for people under 65 years of age diagnosed with life-limiting conditions who need support with daily living and other essential services, but who cannot access these from the NDIS or any other system
  • Inconsistencies in how the NDIS makes decisions about who can access the scheme, where the NDIS believes someone has 12 months or less to live
  • Inconsistencies in what services NDIS participants with a life-limiting illness can purchase with NDIS funds, once the NDIS becomes aware their life expectancy is limited.

“PCA is aware that many people with disabilities continue to face significant barriers to their right to funded support as their conditions progress,” Ms Rowland says.

PCA has already made several recommendations to the Independent NDIS Review, chaired by Professor Bruce Bonyhady AM and Lisa Paul AO PSM. The Independent Review is due to report to government very soon.

“PCA is encouraging the Independent Review Panel to explore opportunities to work with all parts of government to ensure that people with life-limiting conditions get the kinds of supports they need in the last chapter of life,” Ms Rowland says.

“PCA has provided detailed advice to government around addressing these challenges as quickly as possible, while also considering long-term solutions arising from the Independent NDIS Review panel.

“PCA and our members in every state and territory will keep working with government to ensure people towards the end of their life can get the support they need,” Ms Rowland says.

PCA’s submission to the Independent NDIS Review can be downloaded from the PCA website.


Contact details:

Ian Campbell

P: 0417 482 171

E: ian.campbell@palliativecare.org.au

Media

More from this category

  • Environment, Medical Health Aged Care
  • 12/04/2024
  • 14:56
Climate Media Centre

Government heat map ‘wake up call’ to stop burning fossil fuels

Friday 12 April 2024 Advocacy groups have welcomed the release of the Federal Government’s announcement of a heat mapping tool to assist affected communities deal with the worst of extreme heat, but have called on government to do more to address the root cause, climate change caused by the continued use of fossil fuels. Emma Bacon, Executive Director of Sweltering Cities “Heatwaves are Australia’s deadliest environmental disaster, so we welcome the Government’s acknowledgement of the severe impacts being felt by communities across the country. Clearly, some of the communities most impacted in areas like Western Sydney are facing climate, health,…

  • Biotechnology, Medical Health Aged Care
  • 12/04/2024
  • 13:40
UNSW

UNSW and Mid North Coast Local Health District to boost research and students in rural communities

The strategic partnership will place UNSW students at local hospitals and streamline research collaboration opportunities. UNSW Sydney has signed an historic three-year Memorandum of…

  • Contains:
  • Medical Health Aged Care, Sport Recreation
  • 12/04/2024
  • 08:46
Centre for Healthy Brain Ageing (CHeBA), UNSW Sydney

Industry backing for Wipeout Dementia raises $2.5 million for research

No amount of wild weather could stop Olympic Bronze Medalist Owen Wright and 1999 World Surfing Champion Mark Occhilupo from joining Sydney’s property industry…

  • Contains:

Media Outreach made fast, easy, simple.

Feature your press release on Medianet's News Hub every time you distribute with Medianet. Pay per release or save with a subscription.